Neuroblastoma Family Support

Neuroblastoma Family Support and How we can help

As a charity and knowing what families have to deal with on a daily basis we want to help in any way needed. This can mean in an advisory way on natural treatments, the disease itself, support and providing smiles.

If the child and/or their siblings would like some sort of recreational gift to make them smile, like a toy, day out or holiday, then we will do our best to help.

We would also like to help with funding treatments outside the UK as this was something we struggled to achieve. We ran out of time for our little girl and believe no family should have to struggle to save their child’s life.

What is Neuroblastoma

Neuroblastoma is a rare and aggressive childhood cancer that is diagnosed in under 100 children in the UK each year.

It is a solid tumour cancer that begins in the nerve tissue in the neck, chest, abdomen, or pelvis but usually originates in the abdomen in the tissue of the adrenal gland.

Nearly 70% of those children first diagnosed, have disease that has already metastasized or spread to other parts of the body. The average age at diagnosis is two years old.

Prognosis for neuroblastoma is dependent on age, stage of disease, and the molecular biologic and cytogenetic characteristics of the tumour. There is very little known about why neuroblastoma occurs, or about what factors increase the risk for occurrence.

It is possible that children may present very vague symptoms, similar to those of the more common non- serious illnesses which makes the disease very difficult to detect.

Alternative Home Treatments

• Organic Diet

• Homeopathic Medicines

• Sauna

• Air Purifiers

• Water Filter

Treatments Available in other Countries

3F8 Monoclonal Antibody Therapy

A person’s immune system makes antibodies to attack germs such as bacteria or viruses, but it will not attack neuroblastoma because the tumor is part of our own bodies. An antibody that attaches to neuroblastoma can be made in a laboratory and then given intravenously to a patient. This antibody will circulate in the bloodstream until it finds and attaches to a neuroblastoma cell. And then the patient’s own immune system will attack and kill that neuroblastoma cell.

www.mskcc.org